Monday, November 4, 2024

PD & Heart Disease

 

Diagnosed with Parkinson's Disease (PD) in 2008, I spent the following years understanding the intricacies of living with this condition. Motivated to assist others, I began sharing my insights with patients and caregivers. Observing a general passivity in PD management, I, as an informed patient, believed my experiences could benefit others. Since becoming a PD Advocate in 2011 with the publication of my first book on the subject, I have engaged in numerous activities: delivering presentations to support groups, speaking at regional and national PD conferences, authoring additional books, blogging about PD, launching a patient-centric PD website, and contributing to the development and implementation of PD Palliative Care programs.

Like many with Parkinson's Disease (PD), my journey has unfolded over 16 years, adapting to each new chapter as the disease progressed. I've been fortunate to have blessings along the way, including my wife, Linda, as my caregiver and partner, Dr. Benzi Kluger as my Movement Disorder Specialist (MDS) and colleague, and the guidance of my faith.


During the pandemic, I encountered some issues and traveled to Gainesville to consult with Dr. Michael Okun, the Parkinson Foundation Medical Director at UF, adding another blessing to my journey. It was apparent I was under-medicated. Over the next three years, I collaborated with my MDS at the University of Colorado to seek a solution, which remained elusive.


In early 204, I suffered a fall in an Arizona restaurant due to a wet floor. The following day, at a follow-up with my Arizona primary care physician, she discovered a heart murmur while examining my injuries. An ECG was promptly scheduled. The results revealed severe aortic stenosis (AS), necessitating an urgent cardiologist consultation. I recognized that many AS symptoms mirrored those of PD—fatigue, dizziness, shortness of breath, and diminishing stamina, now compounded by chest pain. I hadn't realized there was another issue with potentially more immediate severe consequences.

My research quickly confirmed the gravity of the situation. However, finding a solution in Denver proved challenging. My initial appointment with Aurora Denver Cardiology Associates in July left me optimistic about their team's suitability and understanding of my urgent needs. They were ready to conduct the necessary tests that would, hopefully, justify the need for a TAVR procedure.

I am happy to report that Dr, Jeffrey Park MD, comprehensive heart expert, with special interest in interventional cardiology and structural heart disease, performed the TAVR procedure for me 11/13/2024 and that it was successful!  Due to the non-invasive procedure, it only took about an hour and the healing process will be much shorter than conventional heart surgery.

From the start, I was encouraged and impressed by Dr. Park's caring approach and obvious personal concern for my quality of life!!